News & Politics Jeni Stepanek’s Last Heartsong Her son was a celebrity, the little boy poet with the devastating rare disease who earned a following around the world. Fighting that same illness—and now, a constellation of other afflictions—the Rockville resident looks back on what a brief but wondrous thing it was to be Mattie Stepanek's mom. Jeni Stepanek, Mattie Stepanek, Heartsongs | Jul 30, 2017